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Archive for June 19th, 2009

So much has been going on around here, and for once I’ve been at a loss of words.

It took me a long time to realize that the loss of words is because I don’t want to blog about facts, I wanted to blog about my feelings. I could do both, if only I was certain what I was feeling?

2009 has proved itself to be a busy year.

We finally have insurance that will cover neuro-psych evals so I’ve filled out what feels like 979 thousand behavior assessments. I know how I feel about the assessments and filling them out — no question about it. What I don’t know is how I feel about the results. Both The Investigator and The Scientist have a full set of alphabet soup problems following them around. (ADHD, NVLD, Dyslexia, SPD, APD, GAD all floating around and scattered here and there) I’m largely at a loss as to how to manage them when they’re all thrown together, I could take them in bits and pieces but together it’s a lot to sort through.

I’ve also decided that Elisabeth Kübler-Ross missed part of the grief cycle. Guilt.

05120901

The Investigator is 11 and just now getting diagnosed with dyslexia. At 11. Why didn’t I push harder? I asked about dyslexia several times at school, but because she doesn’t present typically due to how the non-verbal learning disorder presents my concerns were always laid to rest. (I know, I was shocked. Someone in my family being on the opposite end of the spectrum of textbook!) The school wasn’t dismissive of me, I was always satisfied logically with their explanations, I just wish I would have stopped to listen to my instincts (Even now the logical reasons make sense, I just know more now than I knew then. I wish Foresight had the same clarity of vision as Hindsight)

I’ve been telling people it’s like she’s trying to walk with a broken leg, with a large sore on the other foot. Most people would be able to take the broken leg and some crutches and get around just fine. They might not be able to run as fast or as far but they would be able to get from here to there with very few problems. For Charlet the crutches aren’t very helpful because she can’t stand on that other leg either.

Toss into the mix that this whole process is taking place during the summer.

Ever tried to get a hold of a teacher during the summer? One your child no longer has? Yeah, it’s fun. At least I managed to track down her IEP.

How different would her life be if we’d set up different interventions early on? If money hadn’t come in the way of getting to the bottom of her problems, and now getting the best treatment for those problems.

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